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About Kentucky Boy

Kentucky Boy started this conversation
I am a 52 year old man (that's me on the right) with 3 daughters, 1 granddaughter and a wife.  I hope that I have a lot more life left to live, but I was diagnosed with Cryptogenic Cirrhosis of the Liver in 2005.  Since I was diagnosed, I have lost my health care coverage and need a transplant as soon as possible or I will die.  The transplant center at MUSC will not put me on the transplant list until I can show that I have insurance or I can show that I have $200,000 available to me............this number might as well be 1 million.  I have applied for Medicaid, no word.  I have applied for disablity, turned down and trying again.........I guess they are just waiting for me to pass away before I will be deemed sick enough.  My liver is failing me.  Every day is started with nausea and vomiting.  My spleen is enlarged, white blood count is at 1.8 and platelet count is at 42,000.  If any body out there has any advice for me, please share it!!  I am desperate to find some answers and get on the list for a new liver and the start of a brand new life!!!  My liver disease was caused by a contamination site in Harlan, Kentucky where I'm from.  My mother died from this disease and I have 2 cousins that have already had a transplant.  My brother is just starting to show signs of this disease as well.  The company that did this contamination was Cooper Industries.
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Schmidty
Have found some numbers that may be of help to you.Hope you can get the info and help that you need:

1-800-Go Liver American Liver Foundation
1-718-987-6200 Biliary Atresia and Liver Transplant Network
1-800-563-5483 Canadian Liver Foundation
1-818-781-1006 American Share Foundation
1-800-TRIO-386 Transplant recippents International Org., Inc
1-800-528-2971 The Living Bank

Good Luck and God Bless
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